When my cousin Carrie, a professional equestrian and owner of BayWood Farms equestrian center passed away, and younger brother, cousin John was diagnosed with ARVD, the mission to help fund research began.  

Carrie’s cardiologist  Dr. Hugh Calkins of Johns Hopkins diagnosed her with ARVD/C and urged her to get an implanted cardioverter defibrillator (ICD). A few months later, she dismounted her horse, fainted and they were unable to revive her.

Since then Johns Hopkins Heart and Vascular Institute has become the top ARVD/C Program in the country and is an international leader in the diagnosis, treatment, and research of this condition.

John Campanella became patient #1.

John Campanella the younger brother (cousin) was also diagnosed with ARVD/C, and underwent surgery to obtain an ICD. He and his wife, Kathy, also began their journey in giving money and support to create the Johns Hopkins center.